Interview for Secular Sexuality

CN: brief discussion of sexuality, sexism influenced medical neglect, reproductive disorders, and disability. Remember my interview about sex and disability last month on the podcast Into Your Body? Story time: Before that podcast was recorded, Vi La Bianca, a previous guest blogger for Yopp, invited me to come onto her youtube show Secular Sexuality to discuss sex and disability. To be honest, I felt nervous about interviewing about a topic I don’t particularly specialize in– …Read More

Podcast Interview on Sex & Disability

A few weeks ago I got together with my friend DJ and we had a conversation about disability and sex for his podcast Into Your Body. Dj’s podcast explores some progressive takes on sexuality and your relationship with your body, particularly exploring how these topics intersect with particular marginalizations. This was my very first podcast and my first recorded interview and I had a really good time talking about some of the deeper nuances of …Read More

I Don’t Have Interstitial Cystitis

CN: extensive discussion of bladder problems, urination, pelvic floor work and internal exams, dietary restrictions, food, descriptions of pain; mention of sex, various health problems, and PTSD. I have always needed to pee more often than anyone I know. When I was a kid, in addition to being a frequent bed-wetter, I also wet my pants whenever I laughed too hard and unlike most kids, I never grew out of the habit. My embarrassing attempts …Read More

Why Chronic Illness Makes it So Hard to Leave Home

CN: Detailed descriptions of the experience of pain and other health issues, discussion of chronic pain, disability, chronic illness. My chronically ill friends and I joke about the medicine cabinet worth of supplies we take with us on any trip that’s longer than an hour because we never know what we’re going to need. Going to an appointment: Water, meds, lip balm, hip-brace, sweatshirt. For work: All of that plus lotion, white flower oil (think …Read More

What Is Afforded to You

CN: chronic illness, police brutality, racism, mental illness, medical neglect, forced stay at mental institution. Note: This blog post heavily references a specific article that goes into far more detail of the above topics than this one does, in addition to a number of other heavy topics such as sexual assault, addiction, and domestic abuse. The article referenced does not include a content note. Three or four years ago, I somehow came across an article …Read More

Spoon Theory: What Silverware Has to Do with Chronic Illness

CN: General discussion of the experience of having a chronic illness, reference to ableism and mental illness Have you ever dealt with a chronic illness and struggled to explain to your healthy friends why you just can’t go out with them anymore? Have you ever heard someone say, “I don’t have the spoons for that,” and wondered what they were talking about? Simply put, spoons are a unit of measurement for resources. When someone references …Read More

I Can’t Fix Myself But I’m Supposed To

CN: chronic pain, medical neglect, fat-shaming, discussion of specific health issues and their symptoms Today’s guest post is written as a follow up post to Sunflower Punk’s piece, “Broken,” on her blog on The Orbit. The article covers her life-long struggle with chronic pain, living 6 years with an untreated broken ankle, doctors blaming her health problems on her weight, inaccessible housing, and juggling all of those while also raising a kid as a single …Read More

A Day in the Life of Ehlers-Danlos Syndrome

CN: chronic pain, detailed descriptions of health issues and treatments, emetophobia, mental illness, food and eating issues. A day living with Ehlers-Danlos Syndrome starts with how I slept the night before. Usually, I’m lucky enough to have pain in places that don’t interfere much with my sleep but recently my 5-year old shoulder injury has been bothering me at night. Sleeping on the injured shoulder hurts. If I sleep on the opposite shoulder, I can …Read More

Guest Post on ‘Splain You a Thing: Why It’s Hard to Reveal My Disability to Strangers

To make sure you all continue to have something to read during my writing hiatus, I’m happy to present to you a guest post I wrote for the social justice blog, ‘Splain You A Thing. After you finish reading my article about the struggles of communicating about my disability with strangers and my grief over losing the ability to dance, I highly recommend you check out the work of Ania Bula and Sunflower Punk on …Read More

What Ableism Feels Like

CN: institutional, social, and internalized ableism This was not the blog post I had planned to write this week. Earlier this week, as I was crossing the parking lot toward a grocery store, I noticed a man sitting on a motorcycle. It caught my attention because he was parked near the disability parking spots. I looked again and realized he was parking over one of the striped spaces between the disability spots. Only recently, I …Read More