For years I’ve heard stories from my chronically ill friends of loved ones who abandoned them or who refused to believe that their illness was real. So, I wanted to write a letter to the friends & family of chronically ill people.
Tag: chronic illness
Is Dissociative Identity Disorder Divergent or Disordered?
I believe having DID falls under the neurodivergent umbrella, but at the same time it is a mental illness that can cause a great deal of distress. So, is Dissociative Identity Disorder divergent or disordered?
Squat and Poop: The Art of Adaptation
CN: bathroom talk The story of how the piece you’re about to read came into my inbox is one of the more serendipitous moments that I’ve experienced. I was listening to Mugabi’s episode of the podcast No End In Sight, a podcast about chronic illness, and I was struck by how unique and compelling his story was. When I learned that he was a writer, I knew I needed to contact him and ask if …Read More
Celebrating Disability Pride Month
Disability is a framework that teaches you to prioritize the needs of your mind and body over the expectations of society. Check out these articles to dive deeper into the experience of disability and chronic illness.
How Mast Cell Activation Disorder Changed My Life
CN: extensive and detailed discussion of chronic illness symptoms such as nausea, brain fog, and difficulty eating; discussion of weight loss One day, after taking a short walk, I had a strange health episode. I was incredibly exhausted, totally disproportionate to the amount of walking I had done. I sat down in the chair in the kitchen as soon as I got in, too tired to go all the way to my bedroom, and then …Read More
Patreon Bonus Article: Why We Postponed Our Poetry Book Publishing Date
Originally, it was our plan to have our poetry book published by now. But for the sake of our mental health… (Read More on Patreon)
Why I Stopped Taking Gabapentin
I am updating and republishing some of my early articles from this blog. Please enjoy this article, originally published under the title “Color” in March of 2017, about the early days of my chronic pain journey. CN: extensive discussion of the experience of anxiety, chronic pain, medication side effects, and medical neglect. Duloxetine was the first pain medication my doctor ever prescribed me, an anti-depressant that can sometimes help with pain. A year after I …Read More
9 Things That Blocked My Access to Medical Treatment
This is a new version of an article that was originally published as “26,” about the early attempts to diagnose the cause of my chronic pain and other symptoms, and the many ways my access to medical treatment was blocked for years prior.
Chronic Illness: Wait, Your Body Doesn’t Do This, Too?
A revamped version of my article “The Blue Book” about my discovery of Ehlers-Danlos Syndrome and early struggles with integrating chronic illness into my identity.
“Needing Extra Care Doesn’t Make You a Burden” Got a Glow-up!
Back when we first started designing and releasing our own original designs for merch, in August 2020, our very first design was the simple drawing of an orchid with the words “Needing Extra Care Doesn’t Make You a Burden.” After doing a few more designs, we learned a lot more about how to do digital art, what our style was, and how to make art that prints well. After a while, our first piece seemed …Read More