I originally wrote this piece about disclosing disability in the early days of my grappling with the loss of dance as a result of my disability. Since then, my baseline ability has fluctuated many times but even five years later, this piece still resonates strongly with the complex evaluation process necessary to safely disclose a disability, and the grief that comes when the onset of disability is later in life.
When I joined the disability activism community, I learned a new frame of reference that changed how I engaged with the world at large: Accessibility. I had no idea that this concept would expand for me from a branch of activism to a life philosophy and identity: How to be an accessible person.
So, when we first started making digital art, we….[Read More on Patreon]
In addition to my disability being dynamic, it also straddles the divide between a visible and an invisible disability, to the point that I can hide it if I want to. But moving between visible and invisible means I also have to make a choice between scrutiny and erasure.
It’s July, which means it’s the month the disabled community has chosen to celebrate disability pride month! Celebrating pride is all about increasing visibility, awareness, and care for a marginalized community. If you are looking for a way to do that this July, read on!
For years I’ve heard stories from my chronically ill friends of loved ones who abandoned them or who refused to believe that their illness was real. So, I wanted to write a letter to the friends & family of chronically ill people.
I believe having DID falls under the neurodivergent umbrella, but at the same time it is a mental illness that can cause a great deal of distress. So, is Dissociative Identity Disorder divergent or disordered?
Please enjoy this this short and wholesome piece by Mugabi Byenkya about adapting to your environment and the value of having your disability accommodated.
Disability is a framework that teaches you to prioritize the needs of your mind and body over the expectations of society. To celebrate disability pride month, check out these articles to dive deeper into the experience of disability and chronic illness.
In 2018 I began showing a collection of symptoms that I couldn’t explain. With a combination of research and luck, I eventually found out that they were caused by Mast Cell Activation Disorder.